1 in 8,000… that’s what she told us…. 1 in 8,000 are the chances of having a baby diagnosed with Trisomy 18….. and now I bet you’re guessing that it isn’t good..and probably leaning towards “What is it?” by now….
Let me share with you what I know….
But before I do I must say had this happened 6, 5, or 4 months ago we might not have taken it as hard as we have… I’ll assume that most of you with children are like us….by 7 months you’ve found out if it’s a boy or girl, gotten a name picked out, started buying the things you expect to need, and started to refer to him as a part of the family….his little brother telling him good night, me carefully poking mom’s stomach to see him kick, and him disagreeing with something that mom “thought she wanted”…. That’s what makes it hard…I really don’t even know if “hard” describes it right now…..and knowing from their diagnosis (with a failure rate of way less than 5%) that mortality is upwards of 95%... and knowing that there’s a chance I will be there to “cut the cord” and see him alive for just a fleeting moment before God takes him to heaven…..I don’t know but it just seems to me that there is another word I should use…
Back on topic…. Trisomy 18 a genetic problem second only to Down Syndrome…you will find a lot more here http://en.wikipedia.org/wiki/Edwards_syndrome ..
Thank you for all your prayers…. Kellie and I have grown a lot in the last weeks, turning more towards God than ever before and we know and have prayed for His will to be done and over the next couple of weeks we will do continue to do so…. We have not lost hope…nor given up…. just excepted the results given to us…. and that everything happens for a reason….and we may not know to years all the reasons why but we will trust in God.....….
Jeff
3 comments:
To My friends the Posts.......
Jeff and Kellie after sending that joke to you yesterday and recieving the text back from you leading me to this site.
I was stunned wondering, what is this, and as I was reading further a horrible feeling came across my stomach. More and more thinking no way has this happened to them.
Well my friend let me tell you. It can! But, a few words of incouragment and understand this isnt like showing off scar wounds to see who has it worse.
Well, my point......Damian our oldest fell some 10' inside our cousins house. From the top of the stairs to the bottom of the next floor. We rushed him to the hospital and to find he was ok and maybe becuase he was a baby and the fact that babies are so limber that saved his life and came away with just a concussion. Well some 5 years later and in and out of hospitals and seeing many specialists' trying to find out why my beautiful first born was suffering from these horrible debilitating siezures. We went to many neurologists and places like Duke medical center and Childrens of Dallas and Medical City. Then a neurologist in Plano finally said lets try brain surgery!!!! Brain Surgery. Is he kidding me, I thought. Well let me tell you its been 7 years since brain surgery and siezure free. Well maybe he suffered from some social type things, but all in all he's a pretty normal kid. I wanted to share this with you becuase I remember being in your shoes and the walls seeming to close in a bit. But, remember with time, prayers, Family, and Friends you all will get through this and some day youll be sharing this with Adens kids........Love you guys
Your friends,
Andrew and Renea
Jeff and Kellie,
I have no great words of wisdom or words that will could make you feel better but please know that Jimmy and I will be praying for your family that our Abba Father will give you HIS peace,strength and wisdom to get through this. We ask for His healing for little Aden.
Theresa and Jimmy Daugherty
JEFF AND KELLIE,
PLEASE KNOW THAT THE SMITH FAMILY IS PRAYING FOR YOU ALL. WE PRAY FOR NOTHING SHORT OF A MIRACULOUS HEALING FOR YOUR BABY. BELOW IS A STORY SOMEONE SHARED WITH ME WHEN BRAYDON WAS DIAGNOSED WITH CANCER. ALTHOUGH IT MADE ME CRY, I FOUND GREAT COMFORT AND PEACE WITH THE SITUATION GOD HAD GIVEN US. I PRAY IT DOES THE SAME FOR YOU!!
Some Mothers Get More
by Lori Borgman
My friend is expecting her first child. People keep asking what she wants.
She smiles demurely, shakes her head and gives the answer mothers have given throughout the pages of time. She says it doesn't matter whether it's a boy or a girl. She just wants it to have ten fingers and ten toes.
Of course, that's what she says. That's what mothers have always said.
Mothers lie.
Truth be told, every mother wants a whole lot more. Every mother wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin.
Every mother wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly.
Every mother wants a baby that will roll over, sit up and take those first steps right on schedule (according to the baby development chart on page 57, column two). Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions. She wants a kid that can smack the ball
out of the park and do toe points that are the envy of the entire ballet class.
Call it greed if you want, but we mothers want what we want.
Some mothers get babies with something more. Some mothers get babies with conditions they can't pronounce, a spine that didn't fuse, a missing chromosome or a palette that didn't close.
Most of those mothers can remember the time, the place, the shoes they were wearing and the color of the walls in the small, suffocating room where the doctor uttered the words that took their breath away. It felt like recess in the fourth grade when you didn't see the kick ball coming and it knocked the wind clean out of you.
The health problems our children have experienced have been minimal and manageable, so I watch with keen interest and great admiration the mothers of children with serious disabilities, and wonder how they do it.
Frankly, sometimes you mothers scare me. How you lift that child in and out of a wheelchair 20 times a day. How you monitor tests, track medications, regulate diet and serve as the gatekeeper to a hundred specialists yammering in your ear. I wonder how you endure the cliches and the platitudes, well-intentioned souls explaining how God is at work when
you've occasionally questioned if God is on strike. I even wonder how you endure schmaltzy pieces like this one -- saluting you, painting you as hero and saint, when you know you're ordinary.
You snap, you bark, you bite. You didn't volunteer for this. You didn't jump up and down in the motherhood line yelling, "Choose me, God! Choose me! I've got what it takes."
You're a woman who doesn't have time to step back and put things in perspective, so, please, let me do it for you.
From where I sit, you're way ahead of the pack. You've developed the strength of a draft horse while holding onto the delicacy of a daffodil.
You have a heart that melts like chocolate in a glove box in July, carefully counter-balanced against the stubbornness of an Ozark mule.
You can be warm and tender one minute, and when circumstances require, intense and aggressive the next.
You are the mother, advocate and protector of a child with a disability.
You're a neighbor, a friend, a stranger I pass at the mall.
You're the woman I sit next to at church, my cousin and my sister-in-law.
You're a woman who wanted ten fingers and ten toes, and got
something more.
You're a wonder.
THANK YOU GOD....
FOR GIVING ME MORE!
VICTORIA SMITH
(BRAYDON'S MOMMY)
WWW.BRAYDONSMITH.COM
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